I love knowledge. I always have. Growing up in a family with so many secrets, I have always strived to be transparent and open with my knowledge and skills.
Being a cannabis advocate in Massachusetts makes that so easy. We are lucky to have the ability to watch hearings and government meetings and share them with everyone on line. I belong to hundreds of Facebook groups. Most of them are for business and advocate purposes. I’m also a special needs mom. As many of us are, I belong to dozens of support groups and pages. I have been so busy with juggling so many balls, that I have had no time to create in the special needs community here any kind of connection, I’ve been so burned in the past.
I was put in Facebook “jail” in early January and just released this week. My “crime” was sharing a public government video discussing cannabis to groups that I belong to, most of them private.
My ability to do my work was compromised a bit, but I found ways around the “punishment”. The one thing I couldn’t do was post or comment on my support group pages. This effected myself and my family at levels I can’t even put into words.
Special needs parents rely on support from others like them for their sanity. It’s not just about needing a shoulder to cry on, we learn so much from each other’s experiences. I have learned more from other moms with kids like mine than any doctor or therapist. When Facebook cut me off from my groups, my online village, it was more than devastating.
Then in February I received my most recent heartache. My mom has stage 4 and there was no one to turn to for help. I was desperate to reach the thousands of advocates I knew for advice. I tried to join new support groups for families dealing with terminal cancer, my punishment prevented me from doing so.
Now with this COVID-19 online interaction support is more crucial than ever. It’s how we stay in touch with the outside world being locked away while the world is accosted by this virus. Without human interaction, we lose who we are not to mention what little sanity we still hold on to after endless weeks of isolation.
So now I am free. Free to get the advice and support I need during this time. Shame on you Facebook. I wish to hell there would be something else so we could just boycott you and be done with. Shame on you for having a mother feel even more alone than she needs to be.